第130回HGPIセミナー「難病法施行から10年『難病と社会を繋げる～メディアと当事者家族の視点から～』」

日本医療政策機構（HGPI）では、医療政策のオピニオンリーダーやイノベーターを招き、さまざまな医療政策のテーマに関するセミナーを開催しています。

HGPIでは、2024年度より難病・希少疾患プロジェクトを始動いたしました。本セミナーでは、読売新聞東京本社編集局医療部 記者の安藤奈々氏をお迎えし、難病を取り巻く現状やこれまでの取材を通して考えるメディアの役割、さらには今後の難病政策に求められることなど、医療記者と当事者家族の視点から幅広くお話いただきます。

■ 登壇者プロフィール

安藤 奈々 氏（読売新聞東京本社編集局医療部 記者）
中央大学法学部卒。2010年、読売新聞東京本社に入社。長野支局、経済部などを経て、2017年から医療部で医療取材に携わる。現在は主に小児医療、生殖医療を担当。
妹が指定難病の「レット症候群」で、難病の患者さんや家族にとって確かな情報を広く発信したいと医療記者を志した。難病における新たな診断・治療法の研究や、当事者を取り巻く生活環境の課題などをテーマに取材を続けている。

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(Webinar) The 130th HGPI Seminar “Marking a Decade of the Act on Medical Care for Patients With Intractable Diseases: Connecting Intractable Diseases and Society From the Perspective of a Media Professional and Family Member” (January 28, 2025)

Health and Global Policy Institute (HGPI) holds seminars with opinion leaders and innovators on a wide-range of domestic and international topics related to health policy.

HGPI launched the Intractable & Rare Diseases Project in FY2024. 
For the 130th HGPI Seminar, we will host Ms. Nana Ando, who serves as a journalist on the medical desk at the Editorial Bureau of the Yomiuri Shimbun Tokyo Headquarters. From the perspective of a medical journalist and as a family member of someone living with an intractable disease, Ms. Ando will discuss current circumstances surrounding intractable diseases, the role of the media as viewed through the lens of her past coverage, and what is needed in terms of future intractable disease policy.
 

■Speaker's Profile

Ms. Nana Ando (Journalist, Medical Desk, Editorial Bureau, Tokyo Headquarters, The Yomiuri Shimbun)
Ms. Nana Ando is a graduate of the Chuo University Faculty of Law. She joined the Tokyo Headquarters of the Yomiuri Shimbun in 2010. After serving in posts at the Nagano Office and in the Economics Department, she has been covering healthcare as a journalist on the medical desk since 2017. Her main areas of coverage currently include pediatrics and reproductive medicine.
Ms. Ando’s younger sister lives with a designated intractable disease called Rett syndrome, and she became a medical journalist out of her desire to broadly disseminate reliable information to people living with intractable diseases and their families. In that role, she continues to report on research on new methods of diagnosing and treating intractable diseases, and on issues in the daily living environment for affected parties.

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